Tuesday, September 30, 2014

All I am or hope to be....


Good morning friends,

Today is ever closer to the anniversary of my mom's death.
I never thought I would or could make it without her.
But she raised strong children.
She was an amazing woman, everyone who knew her loved her.
As I remember things about her, I get fresh perspective on life.
She loved to tell stories, make jokes and have fun.
Life at our house was not always great, but rarely boring.
She was also my greatest fan. She encouraged me and helped me find the creativity that was inside me.
School was hard for me, I had dyslexia and anxiety and I was way more social than academic. But she never go mad at my grades, she just said "That is not what makes you who you are, and if you are a good person on the inside that is all that matters" She fought along side of me for years as doctors couldn't figure out my diagnosis and actually her death was so horrific to me it made me so sick, doctors were able to finally figure it out. There isn't a day that goes by I don't miss her. My heart aches so badly for her voice and warm hugs.
I also know I could never wish her back from the place she longed to be the most. Heaven.
Nearly daily and more, she would say "I just want to go home" my sister in law wrote a song for her funeral about it. She missed her mother and father, sisters and brothers. Most of all she wanted to sit at the feet of Jesus. She was never afraid to tell people about Jesus and right up to her dying breath she did just that.
Now she is "HOME". as badly as my heart aches for her, I could never even think of taking back to earth.
She was the glue in our family and now we are all spread out and disjointed,  others have also stolen so much life from our family. I long for the day we are reunited with her all together. She is with my sister, who died just before she conceived me, still born in an era of just take it away and deal with it. Now so much is put into those precious moments after births like this. She always felt a hole, the baby wasn't named there wasn't a funeral or anything, just a broken mothers heart. I am so glad that has changed.  My mom was unique in every way, she was always creating, and gomming as she would say. Not a great house keeper, and as a cook it was questionable, literally you had to question anything she put before you. But there was never a lack of love and laughter. My favorite quote is by Abe Lincoln "All I am or every hope to be, I owe to my angel mother" and that is so true. I am going to talk more about her in coming days, her life and death. the mantle she bore and passed on. For those who knew Blue Ryan, my hope is you will remember the joy and spirituality she shared and also do that in your life,

                                                               Be blessed
                                                                     Always
                                                                          Suszi

Monday, September 29, 2014

Coming back.....HE IS GOD




Good Morning friends,
I know it has been so long since I have blogged and I am sorry.
I felt as though all I was doing was whining and complaining.
It has taken me a while to come to grips with my new life.
I guess the hardest part for me emotionally is the hopelessness you feel.
How you feel it is pointless to be alive. Not that I have that choice.
There HAS to be a reason for this pain. 
I am so tired of hearing, "I understand, because _______".
I cannot explain to you in mere words the pain I feel, physically, mentally and spiritually.
I hate not being a part of life. I hate feeling left out cause you know I won't come anyway.
I hate not feeling vital. 
Those of you who know me personally, know I am not a sit down person.
Yet, here I sit.
I miss life, miss friends and Independence.
I plan little, and always over do it.
I wish so badly to make others understand, to be an advocate, to teach.
No one seems to take the time to try, to understand.
Knowing people think you are faking or seeking attention is ridiculous.
I am capable of gaining attention in a positive way, with out the help of this damn disease.
I know others mean well, with their advice, about eating , exercises, life.....
But until you try to understand what this is, how can you advise?
I wear a spoon. A spoon for courage, strength and hope.
A reminder that my joints might not always hurt, That my toes that are swollen, wont always be, that my tongue that has constant sores may not hurt forever.
I stand on the verse

I know God is near, I know He heals, I know He wants wellness. I don't understand why?
But I stand firm knowing HE IS GOD.
When I wake and cannot move.HE IS GOD.
When my body goes numb and tingly, HE IS GOD.
When my toes and fingers swell, HE IS GOD.
When my mind is dark and brooding, HE IS GOD
When hopelessness abounds HE IS GOD
When my spoons are gone, HE IS GOD
When I worry if today may not turn into tomorrow
HE IS GOD
When I cannot pray, because there are no words HE IS GOD
When others need me, and I wonder how can I help them. HE IS GOD.
When I see joy on a child's face, HE IS GOD.
When my husband prays for my pain, HE IS GOD
when my child learns to understand why I cannot, HE IS GOD.
When I can't, HE IS GOD.

All I know in this life that is certain or true, that is a certainty, that is without question is...
HE IS GOD.

Be blessed today 
and thank you for encouraging me back Nan

Always
Suszi